The International Federation for Spina Bifida and Hydrocephalus (IF) is the world-wide umbrella organisation (INGO) for Spina Bifida and Hydrocephalus organisations. It was created in 1979 by national organisations of people with these impairments and their parents. Today IF’s membership consists of 32 regional and national umbrella organisations for Spina Bifida and Hydrocephalus. Further, IF has an intense contact with regional and national organizations in over 50 countries, spread over five continents.
IF aims to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers involved in the Hydrocephalus and Spina Bifida field.
Since 2008, IF is supported by the European Commission, Directorate Employment, Social Affairs and Equal Opportunities under Progress.
